I will begin my first round of chemo next Tuesday in Ashland. This chemo will be an outpatient kind so I will be able to go to the infusion center and then go home. I will get 4 treatments over the next 6 weeks.
This chemo will bring me to the beginning of November where I will then head down to Mayo to begin the stem cell transplant process. This will be about a 6 week process depending on how everything goes. In these 6 weeks I will undergo many tests to check for organ function, surgery to implant a central line (and removal of my port), and may other things to make sure that I'm physically and mentally ready. I will then undergo an intense 4 days of harvesting my stem cells which will be kept and stored for me - this will be taken from my blood. Once they get the number of stem cells they need, I then will be admitted to the hospital for 7 days to undergo intense chemo therapy. The hope with the chemo is to put the disease in total remission before the transplant. They will proceed with the transplant either way, but the chances of being cured are higher with no disease present in the beginning.
After the seven (yucky) days, I will then be 'rescued' with my stem cells. My stem cells will populate and take over the blood cell production and begin to give me my strength back. Once this happens I am able to leave the hospital, but I need to stay down in Rochester for at least 2 more weeks to get checked every day by my doctor. They check for infection, blood counts etc.... The nice thing about this is that most of it is outpatient and I can come and go as I please, but I need to have a 'caregiver' with me at all times and I have to stay within a half hour of the hospital this whole time.
As of now, if everything stays on schedule, I will not be home for Thanksgiving and all the fun fall stuff that we do :(, but I'm hoping to be home for Christmas. This is the goal that I have set for myself and I'm really hoping and praying that we can make that happen.
We are now trying to figure out the details on where I will be staying down there during this period and who my caregivers will be/when. There is a lot to think about and plan during this time, but we are grateful that we have the next 6 weeks to do so. We appreciate all of you so much and all that you have done for us so far!
Oh Miranda, what can we say or do to make this somewhat easier for you? Well with a good, but not an easy plan, and good participants that all work together, things usually go as planned. You will prevail through all of this, this we know.
ReplyDeleteWe truly will be thinking and praying for you daily for all the strength, hope, and courage that we know you have been given. If you need help with the kids or just things around your home, just let us know, we are always here for you. And also wishing you and your family a Merry Christmas kind of early, because we know it will be extra special for you this year. Take care, XOXO, Love, The Koosmann's
Thanks so much for the update Miranda. I know how hard it is going to be for you having to miss Thanksgiving, but just keep Christmas in your thoughts. You are one tough cookie! I'll be sure to give an update of the situation at church tomorrow. Love ya!
ReplyDeleteI have one week of vacation left that is set aside for you -----just tell me when and I'll arrange it! XXOO Granny
ReplyDeleteMiranda,
ReplyDeleteIt's that positive attitude and determination that is going to help you reach that goal! You are truly amazing girl!! Thinking of you lots and lots. Sending big hugs!! We are here if you need anything, and we mean anything!
Love you,
Heidi
I will be there to be a caregiver anytime you need or want me...just say the word. Keep on fighting like a girl and I have no doubt that this will all be behind you soon.
ReplyDeleteLove,
Annette
Hi Miss Miranda! I hope you are feeling OK. I have been thinking about you. I sent you an email, but I am sure you haven't gotten it. Big hugs to you! I am here if you need to talk or whatever. I love you! Take care.
ReplyDeleteMelissa Jean
Miranda: Just name whatever you need & I will be there. I have a girlfriend who lives in Rochester, if you want me to contact her to find a place to stay, let me know. I can give Granny a break when she needs it. Cyndi
ReplyDeleteHey sis: I am willing, and at that time, probably able to come home and assist you in any way needed. Let me know if your interested through dad.
ReplyDeleteHey girlie...sounds like a tough road ahead of you yet but I know you're going to power through with that amazing determination of yours. I want to help you with whatever you need while you're down here. I'm only 45 minutes from the hospital and while that's outside of the 30 minute restriction I'll be down there as much as I can!! Love you girl and good luck with the treatments in the coming weeks up there. Stay strong!!
ReplyDeleteMelanie
Sounds like a good (but hard) plan to put this behind you!! Stay strong as you have proven you can do already and you will pull thru! Please let me know how I can help here! It would be no problem for me to pick Dylan up from school to hang out w/ Kyle anyday or everyday if needed..or watch both boys whenever!! PLEASE don't be afraid to ask:) Keeping you in thought and prayer! Love ya, Gina
ReplyDeleteMiranda & Jason, please please let us know if there is anything we can do. You need as many helpers as possible during this time. XOXOX
ReplyDeleteMiranda,
ReplyDeleteThere are NO words to make things better. But just know that I continue to think about you and send prayers for strength and recovery EVERY day!
Love,
Melinda
Miranda, thanks for updating us on what your next step will be. I know you will do great! You are the most positive, happy person that I know. My job is very flexible, so I would be happy to be a caregiver, whenever you need! Hugs to you!
ReplyDeleteAngela
Anytime you need us, for anything, let me know. We will be there for you and your family.
ReplyDeleteGod Bless,
The Gordons
Hi there,
ReplyDeleteI wish I were closer so that I could stay in touch better. Everything will work out for the best, you are a very strong person who won't anything get you! I hope that the schedule stays on track!!! My mom is flying out on 11/19, they will plan to induce me that following week and we are hoping to be back in Wisconin the first or second week of December with our baby and we plan to stay the entire month of December... I wanted to let you know as you are one of my closest friends and I really want you to see my little one! Hang in there and kick some ass!!!
Lots of love to you, Jason, Dylan and Hayden! Miss talking to you!
Erica
Dearest Miranda,
ReplyDeleteYou are constantly in our thoughts and prayers on the old second floor of the Ponz. I'm not sure what plans are in place for caregivers, but know that I would be happy and honored to help with your care.
Love you!
Patti