Well my treatment today did not go as planned. I had a rare anaphylaxis reaction to one of the three meds that I received today. After only less than a cc entering my body I could not breathe. This probably was the most scary moment in my entire life. The nurses at the infusion center are so wonderful and knew exactly what they needed to do and I started to regain my color within minutes, but it did take me a long time to regain my composure enough to finish my treatment (minus this drug).
My Ashland doc called my Mayo doc to see what the next step was and my Mayo doc is very adament that I still receive this drug. As you can imagine I began to have a lot of distress about this, but my doc and nurses told me that the drugs that I will need to counter this reaction will be in my system before I get the drug again and they assured me that this won't happen again..... I am scheduled to receive this drug again tomorrow at 1:30 p.m.
It comes down to the fact that I need to go through whatever hell I need to go through to knock this crap out of my body....this definately will be very difficult for me, but I will pray for strength to get through it and I ask that you all do the same for me.
I'm so thankful that Jason, my ROCK, was with me through this horrible ordeal, holding my hand. I just love him more and more with every day!
I am VERY sorry to hear about the odd reaction. I will pray for your strength, courage, and ultimate CURE! Keep it up the great support big Bro'.
ReplyDeleteHugs to all of you!
Tammy
oh my gosh, that's so scary!!!! Thank God the nurses were there and calm and knew what to do. I'm praying for you daily...hang in there!!
ReplyDeleteLove you,
Melanie
Oh, Miranda ---I am sorry ---Jason just stopped by! I am sorry! I am so happy you have one another and we all have all of you ---it's called "family" and you lean as much as you need to on us. I know you will bite the bullet and fight this bitched (excuse) thing but why does it have to be so difficult?????? Praying, praying, praying!! Love you all! Granny
ReplyDeleteWe feel so bad you had such a traumatic treatment today. Very scary for you and Jason both I am sure. He must be very strong too. Thank God for skilled nurses and doctors to quickly whisp you out of that situation, but never quick enough that you had to experience it. Good luck tomorrow with your treatment, you'll do great. Stay strong girl, this lymphoma doesn't know who it's facing. Had a great time with you and your family Sunday. Kids are such great entertainment. Love and prayers, the Koosmann's
ReplyDeleteSo sorry that you had such a bad reaction to this drug. I hate to hear of the struggles you are going through. You and Jason are in my prayers constantly that you kick the crap out of this horrible disease!
ReplyDeleteI will keep on praying!
Heather Petersen
Sorry all didn't go as planned today. Now the bugs are worked out so things WILL go smoothly tomorrow. Unfortunately you always seem to have to have a big bump before some smoother sailing. That's why I admire you so much though, you have such amazing strength with such difficult experiences! You will be on my brain again all day tomorrow. I LOVE you!
ReplyDeleteSeija
Sending all the strength and Serenity we have. You know the old saying "kill them with kindness" well screw that...just kill them!!!
ReplyDeleteLove you!
Miranda,
ReplyDeleteWhat a yucky day - I'm so sorry! I hope you had a relaxing night with your boys and I wish you the best tomorrow! Kick some a@#!!
Love ya,
Heidi
I will continue to pray for you during this difficult time. Be strong and stay positive because you can beat this! I am sure things will go much better today! Take care!
ReplyDeleteKim Z.
Sending you love,strength and prayers!!
ReplyDeleteGod Bless,
The Gordons
Miranda,
ReplyDeleteSorry you had a scare yesterday at your treatment. That happened to my dad last June. Once he started taking the steroids before treatment, he was just fine. So I will pray you have the same success today and throughout. We are all pulling for you, girl!
I will send extra prayers around 1:30 for a successful session today!
Love, Melinda
Miranda,
ReplyDeleteI am so sorry for your bad experience with the drug. You go in today knowing that we are praying EXTRA hard that all goes better. Keep your strong (and admirable) attitude and just kick the living crap out of this thing! (I swear if any of us could, we would....you know the girl thing!)
Debbie
Miranda
ReplyDeleteSorry to hear that your treatment went the way it did yesterday, how scary!! It seems as though you always have that extra "bump in the road," like you don't have enough to deal with already. Stay strong! We are sending lots of prayers, hugs and love to you guys today and everyday. I hope all goes well with your treatment today.
We will be thinking of you all day.
Love, Danny, Tracey, Keyan and Davin
My prayer is that the Lord would confound the bad cells in your body, to keep them from gathering together and accomplishing their unholy goal, making them to not understand each other just like He confounded those who gather together at the tower of Babel. After He confounded them they scattered, not being joined together, and their goal never reached it's end.
ReplyDeleteThat post brought tears to my eyes, I can't even imagine the fight you have in you, it is unbelievable. Keep up the wonderful spirit that you have and I we constantly keep you and your family in our nightly prayers. Take care and don't let go of that special man by your side.
ReplyDeleteAmanda
Randa,
ReplyDeleteWanted to share the link to the Hope Lodge in Rochester. If you have never heard of it, it is offered through the American Cancer Society. It is FREE for cancer patients and their caregiver. There is a Hope Lodge right in Rochester. I just wanted to let you know about it in case you were not aware. Might want to check it out. We toured the one in Minneapolis and it is amazing!
Hope this helps! http://www.cancer.org/docroot/subsite/hopelodge/MN_Rochester/ss_index.asp
Melinda - the hope lodge is not available to me as I will be a transplant patient....they have a separate home for transplant patients, but there is a fee to stay (If I can get in). The fee is smaller than a motel (thank goodness), and I'm trying very hard to get into that! Thanks so much for the info!
ReplyDelete